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The NeuroCare Network is a network of not-for-profit organisations representing at least 35,000 adults and children living with progressive neurological and neuromuscular diseases in Queensland.

Founded in June 2013 by MS Queensland CEO Lincoln Hopper, the NeuroCare Network meets informally as a forum to find ways of working more effectively and efficiently together to better serve these people across Queensland. We discuss common developments influencing our individual organisation’s including funding, policy, legislation, service delivery and care models and national developments including the National Disability Insurance Scheme (NDIS).

SPARK NEUROCARE

Spark logo reducedOn 1 July 2016 Spark NeuroCare commenced operating in Townsville. Spark NeuroCare has been established by seven members of the NeuroCare Network as an innovative not for profit care service for people living with a progressive neurological disease. When fully established across Queensland, Spark NeuroCare will address the significant unmet need for coordinated care for people with progressive neurological diseases.

 

During 2014, our significant effort and progress in working together was recognised by Westpac Community Leaders Awards 2014 “Partnerships for Purpose” category. Looking ahead, in 2015 the NeuroCare Network will begin working formally together to explore two joint state-wide innovative service delivery projects for people living with progressive neurological and neuromuscular diseases in Queensland. Organisations represented by the NeuroCare Network currently include:

 

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MS Queensland 
MS Queensland works hard to be the first-choice for MS information, education, treatment, care and support across Queensland. Our vision is a world free from multiple sclerosis (MS) and its devastating impact. We exist to help people living with MS to get the best out of life; to advocate for change and to search for a cure. In Queensland, nobody has a better knowledge of the disease nor assumes a greater role in education and raising awareness of MS than us. We play a pivotal role in quality control and ensuring that people with MS are having their needs met, and in advocating on their behalf.
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Alzheimer’s Australia (Qld) 
Alzheimer’s Australia (Qld)’s mission is to reduce the impact of dementia on the community. They do this by providing education, information and support for people with dementia, their families and carers.  They also work to raise public awareness and understanding of dementia in the wider community.
EpilepsyQueensland
Epilepsy Queensland
Since 1969, Epilepsy Queensland Inc has been dedicated to improving the quality of life of people with epilepsy and their carers/families through advocacy, research, support and information. Considerable effort is put into increasing public awareness and raising community understanding of epilepsy.
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Friedreich’s Ataxia Network (F.A.N.)
Friedreich’s Ataxia Network’s mission is to foster a positive outlook among FAers and their families, and to assist FAers to achieve their potential. They compile relevant and timely information on FA and make it readily available and promote and support research in any area relating to FA. They also assist in clinical trials where appropriate, and assist in educating professionals through participation in seminars and information sessions.
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Huntingtons Queensland 
Huntingtons Queensland was established as a small voluntary support group in 1976 and is now a well-established professional centre providing support to hundreds of families and professionals throughout Queensland. The Association is a member organisation of the national and international Huntington's Disease Associations. Fundraising through membership contributions, donations and other activities help them expand their services and awareness of Huntington's Disease.
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Leukodystrophy Resource and Research Organisation Inc.   

www.leukodystrophyresourceresearch.org

The Leukodystrophy Resource & Research Organisation Incorporated (LRRO) and the Australasian Leukodystrophy Foundation (ALF) were started by Bob Wyborn to meet an urgent Australasian need to supply and support Resources and Research into all the Leukodystrophies and those Leukoencephalopathies that may be closely allied. The goal is to maximise the care to the Leukodystrophy families of Australasia and to enable them to access all available resources and to be part of the worlds research programs. The holistic approach taken will advance the ultimate aim of determining a cure for the individual Leukodystrophies.
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MND Association Queensland 
The Motor Neurone Disease Association Queensland (MNDAQ) is committed to supporting and maintaining the quality of life for all people living with MND within Queensland. To do this they run an Information and Referral Advisory service that provides essential information to families, health professionals and the general public, physical and emotional support to patients and carers, and referral to appropriate medical, health and community services.
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MND and Me Foundation 
The MND and Me Foundation Limited is a not for profit organisation that was formed to raise awareness of Motor Neurone Disease (MND) and its' impact in the community. They saw a need to assist people living with MND and their families to maintain their independence and quality of life for as long as possible. The Foundation intends to contribute financially toward research into finding a cure, but until one is found, their major objectives are to ensure those who have to live with this terrible disease and their families are supported by the Foundation both in financial and non-financial ways.
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Muscular Dystrophy 
The Muscular Dystrophy Association of Queensland Inc. is building on the hard work of their earlier volunteers. The Association is incorporated and is recognised as a credible and accountable provider of services to clients with MD and their families. Muscular Dystrophy Queensland is working closer than ever with other service providers, Queensland Health, Disability Services and other government agencies to ensure that people with MD and their carers are aware of, and have access to, preventative health education, services, and community support.
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Parkinson’s Queensland 
Parkinson’s Queensland aims to alleviate the distress experienced by people who suffer from Parkinson’s disease or related disorders, by offering training, information and assistance. They work collaboratively with other community service providers and allied health professionals to provide greater public understanding of the impact of these illnesses and the limitations and special needs of those affected. They also encourage research into the cause and treatment of Parkinson’s disease and related disorders.
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Youngcare
Youngcare was established in 2005 following the inspirational story of one woman’s battle to find relevant and dignified care. Currently over 7,000 young Australians (under the age of 65) with full-time care needs are living in aged care simply because there are few alternatives. There are also 700,000 more young Australians being cared for at home by family and friends, often with limited support. All young people deserve to live young lives. Youngcare is committed to raising awareness of the issue across the nation so that we can drive change and create real choices for young Australians and their families.