60 years ago, MS was considered untreatable…
But thanks to the generosity of our supporters over many years, so much has changed in the way we diagnose, treat and support people living with MS. We’re closer than ever to achieving a future free from the pain of MS and its devastating effects.
And it’s all thanks to the strength of our community. A community who will be here for the long haul.
In 1995, MS Queensland helped set up Queensland’s very first MS clinic, which was a significant step forward in the support available for those living with MS. It was also around this time the first drug treatment for Relapsing Remitting MS became available, which could reduce relapses and slow down the progression of the disease.
For the first time, we had real hope a cure might one day be possible.
“Breakthroughs happen. The hope is that one day we’ll be able to turn MS off and actually repair the damage it does. Until then, we’ll be here to make sure no-one faces MS alone.” Tim O’Maley, MS Nurse Practitioner.
With a condition like MS, there’s no such thing as a one-size-fits-all solution. Imagine facing the news you have MS, and not knowing where to start.
“Everyone’s reaction to an MS diagnosis is different. For some it’s a relief, especially if they’ve had months or even years of worry and painful symptoms without knowing the cause. For others, its uncertainty and that perception of ‘How long until I’m confined to a wheelchair?’”
There are lots of misconceptions about MS, which is why it’s so important for our Nurses to have the latest information and research, so they’re able to give people a better understanding of what they are dealing with.
Today, there are many different long-term drug treatments available and that’s where our Nurses step in and help navigate the options available.
Tim says, “I’ve been working with people living with MS for over 20 years and a lot has changed in that time. Our knowledge of non-drug therapies to support people is growing all the time. It can take a long time to discover whether a treatment is working. We also have to consider the side-effects of treatment, which can be severe. Sometimes the side effects can be as difficult to manage as the disease itself.”
Together, we’ve come so far, but the truth is we still have a long way to go to end the pain and uncertainty caused by MS.
Tim’s role as an MS Nurse is entirely funded by supporters of MS Queensland. Generous and compassionate people who believe those living with MS should not need to face it alone.
Tim explains, “There are nearly 4,000 people in Queensland living with MS, and only two clinical nurses at MS Queensland. We try to reach as many families as we can, but I’d love to see the service expanded to help more people. With the support of the MS Community, I believe a future free from the uncertainty of MS is achievable.”
Will you join us on this journey and help ensure MS Nurses are there for people living with MS and their families, long into the future? By including a gift to MS Queensland in your Will, you can help ease the uncertainty an MS diagnosis brings. A gift that can change lives for years to come.